The notion of a single ‘primary caregiver’ has been problematised in a study of older Māori with experience of palliative care for a partner or family member. Māori-centred and community-based participatory research principles were used to examine 17 interviews with whānau carers, with thematic analysis using a cultural-discursive framework incorporating Māori principles of wellbeing and values. Findings centred on three roles for whānau carers in palliative care: (1) Holders and protectors of Māori knowledge; (2) Weavers of spiritual connection; and (3) Navigators in different worlds. Health professionals should be encouraged to recognise the cultural embeddedness of dominant approaches to palliative care.
Love this because it is so true. And not only for palliative care but for aged care, for whanau living with disabilities, maternity care, and long term conditions. I’ve been a member of a research group looking at whanau consent in clinical research too, particularly when the research could have impact on whakapapa.
Independent commentary by Dr. Matire Hardwood
Dr Matire Harwood (Ngapuhi) has worked in Hauora Māori, primary health and rehabilitation settings as clinician and researcher since graduating from Auckland Medical School in 1994. She also holds positions on a number of boards, committees and advisory groups including the Health Research Council. Matire lives in Auckland with her whānau including partner Haunui and two young children Te Rangiura and Waimarie.
Research Review publications are intended for New Zealand health professionals.
Disclaimer: This publication is not intended as a replacement for regular medical education but to assist in the process. The reviews are a summarised interpretation of the published study and reflect the opinion of the writer rather than those of the research group or scientific journal. It is suggested readers review the full trial data before forming a final conclusion on its merits.
