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Finding a living kidney donor: experiences of New Zealand renal patients

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Summary:

This paper discusses the barriers to living donor kidney transplantation (LDKT) in New Zealand. While LDKT is the preferred treatment for many people with end-stage renal failure (ESRF), a significant and growing gap exists between the number of people who might benefit from a transplant and those who receive one in New Zealand. One hundred and ninety-three patients on the New Zealand waiting list for a kidney transplant responded to a postal survey about live transplantation. Their responses provide evidence about patterns of donor recruitment activity amongst New Zealand patients. While many patients are willing to discuss LDKT with family and friends, most are reluctant to go on to ask others directly to consider live donation. Patients who have not discussed LDKT with others are significantly less likely to have received even one offer from a potential donor. Pākehā and Māori are more likely to have received an offer to donate and to have had someone go on to be tested for compatibility than either Pacific or Other ethnic groups. Information gaps, ineffective donor recruitment strategies, donor incompatibility and donor medical unsuitability appear to be major barriers to LDKT. Many barriers are amenable to intervention and the implications for policy and practice are discussed.

Comment:
An interesting paper, given the higher rates of ESRF in Māori and Pacifica peoples; the lower rates of kidney transplants for Māori and Pacifica peoples compared with NZ Europeans; and the fact that views from the Māori and Pacifica participants in this study varied significantly, when we are often grouped together.
Reference: Aust Health Rev 2013;37(1):48-53
Independent commentary by Dr. Matire Hardwood

Dr Matire Harwood (Ngapuhi) has worked in Hauora Māori, primary health and rehabilitation settings as clinician and researcher since graduating from Auckland Medical School in 1994. She also holds positions on a number of boards, committees and advisory groups including the Health Research Council. Matire lives in Auckland with her whānau including partner Haunui and two young children Te Rangiura and Waimarie.

Research Review publications are intended for New Zealand health professionals.

Disclaimer: This publication is not intended as a replacement for regular medical education but to assist in the process. The reviews are a summarised interpretation of the published study and reflect the opinion of the writer rather than those of the research group or scientific journal. It is suggested readers review the full trial data before forming a final conclusion on its merits.

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