Hui: a partnership in practice in familial hypercholesterolemia

Making Education Easy

Authors:

Benatar J, et al.

November 24, 2020

Summary:

A Hui was held to empower a large whānau with a history of severe premature heart disease and familial hypercholesterolemia. As a result, a closed social media page with detailed information and a family tree was created to ensure present and future generations access appropriate screening and treatment. With the facilitation of health professionals, this has enabled the whānau to take ownership of their health and inform other health professionals about their disorder. The authors commented that ‘A national systematic programme is also needed to manage this condition with important health outcomes that can be averted if treated from a young age.’

Comment:

Love this research – practical, meaningful, and whānau-based. I can see this being used in other health areas including genetic or familial health conditions.

Reference: N Z Med J. 2020;133(1522):63-70.

Independent commentary by Dr. Matire Hardwood

Dr Matire Harwood (Ngapuhi) has worked in Hauora Māori, primary health and rehabilitation settings as clinician and researcher since graduating from Auckland Medical School in 1994. She also holds positions on a number of boards, committees and advisory groups including the Health Research Council. Matire lives in Auckland with her whānau including partner Haunui and two young children Te Rangiura and Waimarie.

Research Review publications are intended for New Zealand health professionals.

Disclaimer: This publication is not intended as a replacement for regular medical education but to assist in the process. The reviews are a summarised interpretation of the published study and reflect the opinion of the writer rather than those of the research group or scientific journal. It is suggested readers review the full trial data before forming a final conclusion on its merits.