Support needs of families living with children with autism spectrum disorder

Making Education Easy

Authors:

Searing BM et al.

December 17, 2015

Summary:

The aim of this investigation was to determine how caregivers of children with autism spectrum disorder (ASD) in New Zealand perceive the availability and helpfulness of supports used, with a particular focus on caregivers who are Māori, and who live rurally. The study recruited 92 caregivers, all of whom completed the Family Support Scale (a widely used screening tool that details a client’s social networks; Hanley et al., 1998). Free text comments were invited. More support was perceived as available by non-Māori than Māori. Spouses were rated as the most helpful support. Professional helpers were rated as ‘somewhat helpful’. Helpful support emphasised caring, knowledge and accessibility.

Comment:

A number of whānau have described the difficulties and challenges experienced when accessing services to help with the diagnosis, and management, of ASD for their tamariki. Importantly, this research builds on previous work undertaken with Māori living with ASD to focus on the impacts on, and needs of, whānau.

Reference: J Autism Dev Disord. 2015;45(11):3693-702

Independent commentary by Dr. Matire Hardwood

Dr Matire Harwood (Ngapuhi) has worked in Hauora Māori, primary health and rehabilitation settings as clinician and researcher since graduating from Auckland Medical School in 1994. She also holds positions on a number of boards, committees and advisory groups including the Health Research Council. Matire lives in Auckland with her whānau including partner Haunui and two young children Te Rangiura and Waimarie.

Research Review publications are intended for New Zealand health professionals.

Disclaimer: This publication is not intended as a replacement for regular medical education but to assist in the process. The reviews are a summarised interpretation of the published study and reflect the opinion of the writer rather than those of the research group or scientific journal. It is suggested readers review the full trial data before forming a final conclusion on its merits.